Strength, virtual advocacy, and celebrating Pride

"My alopecia ended up being the thing that actually is making my career what it is." -Anthony Carrigan

Welcome, new subscribers! Hopefully you’re staying cool out there now that it’s officially summer. I’ve found myself needing regular reminders to stay hydrated, especially because I’m still pretty house-bound/quarantined here in Los Angeles.

If you’re new and missed last week’s newsletter, catch up here.

xo Traci

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"My alopecia ended up being the thing that actually is making my career what it is…. If you can identify your insecurity and find a way to just become fully self-accepting and forgive yourself for whatever you feel like you’re lacking, and you turn your perspective around, life just gets so much better.” - Anthony Carrigan (BUILD Series, 04/12/19)

I’ve been on a TV rewatch kick lately (thanks, quarantine!) and now that I’ve got HBOMax, I’ve been loving re-visiting Barry. If you haven’t seen it, it’s quite good – in a dark way – and Anthony Carrigan is such a standout in the show. His portrayal of Noho Hank is one of the brightest spots of the series, and I love hearing him talk about his alopecia journey.

#TBT -2017- Queens, NY..with my Alopecian Big Bro @cvbelieve 💙 Thank you for reaching out a few weeks ago, I really appreciate all of your support!! See you soon!!!😊 #ThrowbackThursday #AlopeciaAwareness #BaldStrongMonaFoundation #BeAwesome #BeKind #BaldAndStrong
May 21, 2020

Around the web…

  • 16-year-old Mona Bailey’s jiu-jitsu journey started when she was 9 years old – and since then, she’s been taking home big wins at major jiu-jitsu events, including this past weekend’s Third Coast Grappling: Kumite II tournament. “What I want people to think of me when they see me compete is that any girl — my age, younger, or older — can go out there and show their skills in a male dominate sport,” Bailey recently told The Jiu-Jitsu Times. “We are strong, confident women that train just as hard as the boys/men, and we can put on a great show just like they do. The best part is I love competing! I win some and lose some, but l am always learning from both. Most importantly, I always go out and have fun.”

  • Last week was the National Alopecia Areata Foundation’s annual conference, which took place virtually this year. Part of the conference included a “Virtual Hill Day,” where NAAF members got to meet with elected officials (like Rep. Joe Kennedy) over Zoom to advocate for alopecia research funding. You can watch Rep. Ayanna Pressley’s welcome message for those participating at NAAF’s website, and if you register online, you can watch the recorded live meetings. (Note: each registration is $75)

  • In wig news… How gorgeous is Megan Thee Stallion’s “Aurora Borealis”-themed wig for Pride Month?? The rapper showed off her colorful hair on Instagram in videos and photos, tagging hairstylist and wig specialist Kellon Deryck, who designed the look for her.

My Alopecia Project. Thank you for everyone’s help over the last 18 months getting this researched , shot and published !
March 14, 2020

In case you missed it…

Earlier this year, Guardian photographer Graeme Robertson (who has alopecia himself) began documenting the diverse experiences that others with alopecia have with the autoimmune condition – from a flight attendant to a tech worker to a stay-at-home mom.

It shows how different each person’s alopecia journey is and is a good reminder that everyone experiences alopecia differently. Whether you choose to wear wigs or makeup – or if you feel self-conscious because you struggle with confidence – there’s no one “right” way to be an alopecian. That’s the great thing about this community: we are all different, and yet tied together too in a very unique way.

Alopecia &… Spotlight: @reallyjessicarose

Thank you for following my journey! Allow me to reintroduce myself...⁣⁣⁣
My name is Jessica Rose, but you can call me Jess. I have Diffuse Alopecia Areata. ⁣⁣⁣
The hair on my head started thinning when I was 12. Doc told me it was hormones and my hair would fill in. It never did 🤷🏻‍♀️. I parted my hair to hide my balding scalp, and avoided getting it wet in public the best I could. Defeated, I accepted I just had thin hair. ⁣⁣⁣
I moved to LA when I was 23, and I dunno if you know this, but LA is a vain AF, judgmental city (that I love), full of babes. I felt more insecure than when I was in high school 😬. I got a biopsy and finally had a diagnosis of Alopecia Areata. ⁣⁣⁣
My hair loss does not look like anyone I have seen with Alopecia Areata, but I found it does look just like the definition of Diffuse Alopecia Areata: sudden and unexpected thinning of the hair all over the scalp. It can be hard to diagnose, because it looks a lot like other forms of hair loss, such as Telogen Effluvium, or male or female pattern hair loss (NAAF).⁣⁣⁣
I have made it my life’s mission to normalize and sexualize bald women and wigs. Hair is an accessory and we can be just as sexy without it. I am a TV producer with a passion for baking and cooking. I have a blog @lovesweetmess where you can find more content like this. Thank you for coming to my bald talk. 💕👩🏼‍🦲⁣⁣
#alopecia #Alopeciaawareness #alopeciaareata #diffusealopeciaareata #femalehairloss #hairlossblog #hairlossjourney #lovesweetmess #baldie #baldwoman #shavedhead #baldisbeautiful
June 18, 2020

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